What PERC Members Say
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"PERCs give me a sense of duty and importance. They also give me a sense of community and I appreciate the candid conversations between the scientific community and the patients that are impacted."
- Multiple Sclerosis PERC member -
"I participate because I hope something I say, do or have experienced will help you help others in similar situations like mine."
- Bladder Cancer PERC member -
"I am so happy to be a PERC member! It is a great use of my time, and I appreciate the follow ups on how information is used. I feel like I am making a difference, and it means a lot to me-as a disabled person, it is very empowering to feel useful!"
- Psoriatic Arthritis PERC member -
"I felt the session on getting underserved communities involved in medical studies was important. I want my community to get more involved and I hope these discussions can influence that."
- Cardiovascular Disease PERC member -
"The [Johnson & Johnson] team makes me feel like my opinion matters."
- Cardiovascular Disease PERC member -
"I found the fatigue PERC to be particularly fascinating, as I had no idea how widespread it is in Psoriatic Arthritis. It was very validating to find out that I wasn't alone!"
- Psoriatic Arthritis PERC member -
"The [Johnson & Johnson] partners that work alongside the PERC members; they always listen in to hear our feedback."
- Inflammatory Bowel Disease PERC member -
"[Johnson & Johnson] [is] very [respectful] about the person they're engaging with. Your medical history and everything is personal and kept confidential [and] any activity presented within the PERC is explained with efficiency." (paraphrased)
- Multiple Myeloma PERC member